IC + Severe Nerve Pain = Disaster

I was thinking about this the other day and I realized that it has been just under one year since I was diagnosed with IC. I had surgery on March 29th and my condition worsened drastically, I then found a specialist and was diagnosed around April 18th with a long list of conditions starting with IC.

So nearing a year I feel as though I have been put on more medications to try and help, I am currently still seeking weekly treatments from my doctor and I still don't feel like myself. I have definitely had to become a stronger person this year. Although I know I am strong and can take on the world, this has really tested my mind and body.

I ran a large tournament in Minnesota this past weekend which meant plane travel and long hours, before the tournament started I had to ask the Athletic Trainer if I could have some treatment so I could make it through the day. So here I was before my own event on the table getting heat to try and calm my pain down and explain what was going on. I have to say I have always been blessed to have great Athletic Trainers around me, because of my job in sports, they really do a great job and are caring people.

I found this today and I wanted to share it because it is so true and it reminds me of this journey that I am on, especially as I look towards another surgery in early April.

Today is that BAD pain day

So I woke up this morning at 5 a.m. in horrible pain. I got up and went to the bathroom and then laid back in bed and grabbed onto my pillows.

The odd thing my pain was on my right side which is highly unusual for me. Either way it has yet to be a good morning. I took all of my medications including a full dose of pain medication this morning, after I got out of the shower I had to lay down with my heating pad before getting ready for work. Thank God I can wear sweatpants to work, so I threw on my Under Armour Gear and walked out the door, if nothing else I look stylish, in black and yellow.

So here I sit attempting to get work done, with a heating pad and my Empi unit on trying to drive my pain down. This is just the worst feeling ever. It probably does not help that my stress level has been bad lately. Trying to coordinate this surgery is just so hard, but I know that my body needs it.

Yes, I realize it is only going to fix one part of my probably but if I can get my pain to more manageable levels I feel like I can be my  normal self again.

I would give anything to feel normal again...

September IC Awareness Month

Well while I was at the doctor's yesterday getting my nerve blocks and injections, I noticed a bunch of fliers around for IC Awareness in the month of September. Honestly I didn't know anything about IC until I was told I may have it by the doctor. I wasn't fully diagnosed until April.

I am one in 10% who was tested for IC and had a negative test, but still have IC.

For more information on IC take a look at this webpage which will provide a lot of educational information over the course of the next month.

I guess we even have a ribbon which is teal in color (the same as ovarian cancer and a few others), either way to all of the other IC diagnosed women out there, we can do this and we need to continue to spread the word and educate those around us.