Showing posts with label bladder pain. Show all posts
Showing posts with label bladder pain. Show all posts

Tuesday, March 12, 2013

Getting closer and getting older

Well my 31st birthday has officially come and gone. The month of March is always a crazy one for me as there is so much work to be done, it just seems to never, ever end.

I have decided today that a small bit of retail therapy is going to be my answer to happiness as I plan to go to the mall and quickly I hope find some earrings that I like along with maybe a few other small things.

I have less than a month until surgery, which I am starting to get antsy about. It has started to hit me more this week along with everything else moving in. I also am trying to figure out what is making me randomly fall asleep at the drop of a pin during the day. I fell asleep while driving the other day and almost got in a bad accident. Luckily I was close to a friends, so I was able to pull over safely and take a nap.

I am not sure if this is my medication messing with me or if it is my body saying back the heck up what are you doing?!?!

Either way I do not like it, it scares me. Everything about all of this scares me. Not feeling normal scares me. Not thinking that I will ever have a normal life/relationship scares me.

Today is just one of those days where I am a huge what if? Basically I feel like my life is a big question mark, filled with hundreds of tiny questions. It is strange to think of what I have been through in the past two years, the fact that I went un-diagnosed for so long, which compared to many is not that long as I have learned in talking to my doctor.

I guess the best thing I can say about that is to always be your own advocate, never give up when you know something is truly wrong with your body. You fight and push through it until you get the answers you are looking for, I know I did, but I also know that I had the biggest fear that the doctor would tell me it was all in my head. I knew that was not the case, I am tough and can handle a lot, but I had hit my breaking point. I had never been that depressed in my entire life. Mental illness really is an issue that people have and for many like myself it goes without treatment or a diagnosis, which just leads to worse things in the end.

Anyhow that is enough rambling for today. If anyone actually does read my blog, you probably think geez this girl is all over the place today... well I am and it is exactly how I feel.

Monday, December 17, 2012

Make your time count

It is officially one week until Christmas. I tell you what, Christmas has completely overwhelmed me this year in every way possible.  I did manage to spend most of yesterday wrapping gifts, making chocolate covered pretzels and fudge. I still have some cookies to frost and another batch to bake to take back to my brothers when I leave on Friday. I do feel better about getting a lot done yesterday and taking all day to do it.

Not to mention Friday night was our annual Christmas Party which had at least 30 people if not more in attendance, we had a great time and I was so glad to see so many of my friends in attendance, which made for a very late night.

I got my packages shipped to my family in Florida and my family gift exchange gift to the person I will not see, so that is one check off of the list.

Today... one thing I know for sure is my bladder hates me and I am glad that I am going in for a treatment tomorrow. It is one thing to know you have to go pee, it is another to be in excruciating pain because you have pee. THIS IS NOT OK EVER! To those of you out there with IC that read this, I know you can relate, it is a miserable feeling even when you are doing everything you can to try and keep your body calm.

One thing I do know is I am grateful for the little things this year and on Saturday, I was able to meet a very good friend for dinner in Bethlehem, PA, which was mid way for both of us. On the way home I had a few Facebook notifications, I did of course wait until I got home to check them (yes I was being a safe driver).

Much to my surprise I had written on a local jewelers Facebook page that they were doing a contest with. Here was the question:
          Best "fill in the blank" answer WINS a little something for under YOUR tree!!!
          "All I want from Ream Jewelers this year is ______________"


So I figured what the heck, why not say what I would really like and what it would mean. I am all about jewelry having meaning to me. My claddagh ring was a present from my parents on my 18th birthday, on my 21st birthday I received my birthstone set in white gold. On my right hand I wear the first diamonds I have ever owned that I saved up and bought for myself.  So for the question above I thought back with reflection on this year:

"A Michael Kors watch to remind me that every minute of every day is important and to know that each minute we get is a             blessing. In good times and in bad times we need to keep ticking.... something I tell myself daily as I try and get through the pain, surgeries and doctors appointments."

This year has been a struggle, even worse than 2011 and I really do just have to take it one day and sometimes one minute at a time. This year brought me two surgeries, depression, severe chronic pain,  countless doctors appointments and procedures, lots of medication, travel to see all of these specialist, physical therapy, and some other issues I am sure I am forgetting. I have had to learn to live my life much differently which has been extremely hard and coming to terms with all of this has been even harder. Although I have physically done this alone, I have so many wonderful friends to be thankful for and I don't know what I would do without them.

So my new jewelry goal is a beautiful Michael Kors watch which I have on layaway and will slowly pay off, since my bills and medications have to take precedence. The $50 gift card that Ream Jewelers is giving me from this contest is going directly to this watch and it means so much sometimes to know that there are kind and giving people out there who will do something as simple as this when it will in turn mean so much to me in the future.

This year I have made it my goal to shop locally and buy local as much as I can. I have made some fairly big and necessary purchases all from local family owned businesses. This just encourages me to keep doing so and has earned another loyal customer, plus what young lady doesn't love jewelry? I can't wait to stop in tomorrow and apply my gift to my purchase, so in the spirit of the season Merry Christmas! I hope that everyone out there gets some type of special Christmas wish that comes true.

Tuesday, December 4, 2012

One of those days

Well for the first time in a month I went to the doctors and got my injections which is a good thing, because I really needed them. My doctor worked to re-assure me that I am doing okay and my body still has a lot of healing to do as we work on taking care of all of me not just one part of me.

Stress is just such a huge factor and being a Type A personality that wants to control everything really doesn't help at all.

So I came home tonight and drank my barium drink, I have to start another one tomorrow and then I will walk over to the hospital and get this CT Scan done, not knowing what it might show. Which if it does show anything I am to report that back to my doctor.

I was put on another medication tonight as well... to help with my nerves and to try and get them firing properly. It amazes me how messed up my body is. I just want to be a normal person again. I feel like I try so hard to feel normal and it just fires right back at me and says hello no. It is the most frustrating thing in the entire world.

But I still strive to be normal... whatever normal is. The last time I remember normal I was at a friends wedding in upstate New York having an absolute blast. Next thing I know my life changed with what I thought was a bladder infection that just got worse and worse ... and that was August of 2011.

It is December 2012, since I have turned 30 I have had two surgeries, I can't even count the number of doctors appointments, trips to the pharmacy, injections, etc that I have had to endure.

I thank God that I have some great friends who have really been there for me, they are the only reason I have made it through this... even if it is just a quick text to check on how I am doing, sometimes that means the world.

So tomorrow I have a CT, work, a meeting and I start yet another medication. The only good news when the doctor asked if I was on this medication I told him no and I was right, being that I can't keep my meds straight to begin with.

Now I will be going back to weekly doctors appointments to try and get my angry bladder to calm down. IC really does SUCK!