Well my 31st birthday has officially come and gone. The month of March is always a crazy one for me as there is so much work to be done, it just seems to never, ever end.
I have decided today that a small bit of retail therapy is going to be my answer to happiness as I plan to go to the mall and quickly I hope find some earrings that I like along with maybe a few other small things.
I have less than a month until surgery, which I am starting to get antsy about. It has started to hit me more this week along with everything else moving in. I also am trying to figure out what is making me randomly fall asleep at the drop of a pin during the day. I fell asleep while driving the other day and almost got in a bad accident. Luckily I was close to a friends, so I was able to pull over safely and take a nap.
I am not sure if this is my medication messing with me or if it is my body saying back the heck up what are you doing?!?!
Either way I do not like it, it scares me. Everything about all of this scares me. Not feeling normal scares me. Not thinking that I will ever have a normal life/relationship scares me.
Today is just one of those days where I am a huge what if? Basically I feel like my life is a big question mark, filled with hundreds of tiny questions. It is strange to think of what I have been through in the past two years, the fact that I went un-diagnosed for so long, which compared to many is not that long as I have learned in talking to my doctor.
I guess the best thing I can say about that is to always be your own advocate, never give up when you know something is truly wrong with your body. You fight and push through it until you get the answers you are looking for, I know I did, but I also know that I had the biggest fear that the doctor would tell me it was all in my head. I knew that was not the case, I am tough and can handle a lot, but I had hit my breaking point. I had never been that depressed in my entire life. Mental illness really is an issue that people have and for many like myself it goes without treatment or a diagnosis, which just leads to worse things in the end.
Anyhow that is enough rambling for today. If anyone actually does read my blog, you probably think geez this girl is all over the place today... well I am and it is exactly how I feel.
This blog details my diagnosis of IC and severe chronic pelvic pain. Thoughts outlined here are my own and these experiences are how I am coping with and learning to live with my diagnosis.
Showing posts with label advocate. Show all posts
Showing posts with label advocate. Show all posts
Tuesday, March 12, 2013
Wednesday, October 10, 2012
Mid-Week Update to my First Week Back
I must say this week, even though it is Wednesday sure has taken a toll on me.
This is my first week officially back in the office, being here from 8-5 is taking about every ounce of energy that I have in my body.
I was able to get an office downstairs (because going up and down stairs all day is just too much strain on my body), so I am in the building just not near my co-workers. It has its ups and downs, but for me it is making it easier to get around which is great. I am very thankful to the group that we share office space with, for allowing me to take up space downstairs for a while until I get better.
I feel like I have zero energy, I stopped at Starbucks this morning for a latte, which is not my usual thing to do. I get home from work and I want to do nothing at all. Today however I have volunteered to help on one of the political floats in a local parade, I am trying to expand my horizons and get involved in some groups that I believe in, so tonight after work I will use even more energy, but I think it is for a great cause.
This is my first week officially back in the office, being here from 8-5 is taking about every ounce of energy that I have in my body.
I was able to get an office downstairs (because going up and down stairs all day is just too much strain on my body), so I am in the building just not near my co-workers. It has its ups and downs, but for me it is making it easier to get around which is great. I am very thankful to the group that we share office space with, for allowing me to take up space downstairs for a while until I get better.
I feel like I have zero energy, I stopped at Starbucks this morning for a latte, which is not my usual thing to do. I get home from work and I want to do nothing at all. Today however I have volunteered to help on one of the political floats in a local parade, I am trying to expand my horizons and get involved in some groups that I believe in, so tonight after work I will use even more energy, but I think it is for a great cause.
Saturday, September 1, 2012
In honor of IC Month
I thought it might be interesting to share a few facts that affect my everyday life living with IC:
- I go to the bathroom what seems like all the time.
- I have to base the clothing I wear depending on how I feel.
- I don't think anyone fully understands what it feels like to have this problem unless they have it.
- I denied for a long time that I had IC, because I had the test done and it came back negative. However, I have learned that in 10% of people with IC can take the test with negative results, apparently I really am special.
- IC and bladder problems effect more women in this country than most would think, however many women do not seek treatment.
- The multitude of problems I have... took me months to be able to talk about without crying.
If you think you have a problem, do some research, there are some great websites out there and talk to your doctor. One thing I have learned through this process is not to be afraid to say or ask whatever you may think while you are at the doctor.
You yourself are the best advocate for YOU! Read here for more information on IC.
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