Well my surgery is less than 2 months away... check that is on the calendar.
Doctors appointments weekly... check that is still on the calendar.
Feeling miserable a lot... takes over my entire life!
The past few days have just been absolutely horrible, the pain was just unbearable even with the medicaitons and stronger medications. I feel like my body has surpassed the boundary of what pain really should be and it made it worse. I was so just overwhelmed I almost called and cancelled my appointment because I did not want to be in the car for four hours. I am glad I went and we are trying out another medication I hope that will help, but it will take a little time before we see any changes.
Of course I was asked if I could move the surgery up and I said not a chance, to any of my wrestling fan friends, you obviously know why. Speaking of wrestling we took a huge hit this week with the IOC, dropping wrestling starting at the 2020 games, which is just bull!
I feel like I am doing everything to just keep myself together and that is taking everything that I have right now. I told my doctor let's just get through the next eight weeks and then figure it out from there. Then I will deal with the surgery and what I am going to do about that. Not to mention in the middle of all of this is my birthday, I never thought this is what my life would be like as I was getting ready to turn 31. In all honesty I thought I would be married by now with the beginnings of a family. I guess you never know where life will take you, but I know part of that road it won't be taking me on.
But since I was 29 I feel like all I have known in my life is this horrible pain that just creates a black whole. Yesterday I told my doctor that I literally could not get out of bed, every fiber of my being said no. It was such a challenge. I am thankful that I have understanding doctors. As of April 18th it will have been a year since I first saw this specialist, and March 29th marks the first surgery that lead me into this spiral of life.
Well all I can say is that my hope is still that my 31st year on this earth will still be a good one to me.
This blog details my diagnosis of IC and severe chronic pelvic pain. Thoughts outlined here are my own and these experiences are how I am coping with and learning to live with my diagnosis.
Showing posts with label Anniversary. Show all posts
Showing posts with label Anniversary. Show all posts
Thursday, February 14, 2013
Thursday, August 23, 2012
My one year anniversary
Wow, that sure feels like a sad thing to say. I have extremely mixed feelings on saying it is my one year anniversary of feeling miserable this month. My symptoms started in early August 2011 and just continued to get worse as the days went on. (Let me just explain to anyone this is not how you want to live your life or spend the rest of your summer).
So it makes me reflect back on the past year which has been quite the roller coaster of a journey:
So it makes me reflect back on the past year which has been quite the roller coaster of a journey:
- I have been to so many doctors and doctors appointments I lost count.
- The amount of money I have spent going to the doctors and on medications literally makes me sick.
- When my pain gets to a certain level that also makes me sick.
- I have had one diagnostic surgery which just put me in more pain, which happened in March. The good thing, I know my reproductive system is good.
- I also cannot remember the actual list of medications that I am on, thank God for a good Pharmacists.
- I have had to do some travel and labor intensive work, that is the nature of my job. I cannot fathom how truly strong my body is some days to make it through these events. It is almost scary to realize the level of pain that I am in that my body somehow functions with.
- There has been a lot of reflecting on my part, about who I am and what I want. Also the people that I can truly call friends and who were there for me when I needed it. It is so hard being out on your own and not having a significant other. I am very blessed to have some good friends who have been there for me. I wish some days my family and best friend were not so far away, but sometimes life just takes you different directions.
- This should not come as a shock to those who have known me for a long time but I have a very hard time opening up about my feelings. It took me months to start telling people I was having problems. After my diagnosis in April, I couldn't talk about it without crying like a baby... I am finally getting better about that. Although I find it interesting some people I seem to have no issue saying what my issue is to and others I do.
- I have shed more tears this year than I can ever remember. My hormones hate me, my body hates me and well the medicine is a whole other story.
- The medications that I can't keep straight I have to keep in an a.m./p.m. pill case. Definitely not where I thought I would be when I hit 30 years old.
- I thank God for finding the right doctor who is working to get me better along with his team.
- I think I am finally turning a corner where I can fathom the thought of allowing a person close to me, physically and mentally. Eventually I will get there and maybe someday I will meet the right guy, but for now I am still just trying to focus on getting better.
I can only imagine now that there are other women out there going through these problems and have no idea where to turn, I guess all I can say to that is don't give up.
One doctor early on in this journey, looked at me and said what do you think is wrong with your body? I told him my thoughts and he said you seem to know your body pretty well and I would say what you think is right, because you do not belong in my office. So if nothing else I have found some doctors that seem to listen pretty well.
This is not really an anniversary to celebrate, because well just like how I feel right now it is painful, but I am going to keep pushing through until I get to where I need to be. Right now I am where I need to be and getting my proper treatment. Tomorrow brings another appointment with a nerve specialist, which should set me up for a surgical procedure, hopefully sooner than later and put me on the path to wellness.
Another photo I found that sums up many of my thoughts, not sure of it's origin but it was floating around on Facebook and I find the words to be so very true.
Labels:
Anniversary,
being strong,
chronic pain,
diagnosis,
doctors appointments,
I have problems,
Living life,
pushing it,
suffering,
support system,
traveling,
trying to survive my own life.,
UTI
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