Thursday, August 23, 2012

My one year anniversary

Wow, that sure feels like a sad thing to say. I have extremely mixed feelings on saying it is my one year anniversary of feeling miserable this month. My symptoms started in early August 2011 and just continued to get worse as the days went on. (Let me just explain to anyone this is not how you want to live your life or spend the rest of your summer).

So it makes me reflect back on the past year which has been quite the roller coaster of a journey:

  • I have been to so many doctors and doctors appointments I lost count.
  • The amount of money I have spent going to the doctors and on medications literally makes me sick.
  • When my pain gets to a certain level that also makes me sick.
  • I have had one diagnostic surgery which just put me in more pain, which happened in March. The good thing, I know my reproductive system is good.
  • I also cannot remember the actual list of medications that I am on, thank God for a good Pharmacists. 
  • I have had to do some travel and labor intensive work, that is the nature of my job. I cannot fathom how truly strong my body is some days to make it through these events. It is almost scary to realize the level of pain that I am in that my body somehow functions with. 
  • There has been a lot of reflecting on my part, about who I am and what I want. Also the people that I can truly call friends and who were there for me when I needed it.  It is so hard being out on your own and not having a significant other. I am very blessed to have some good friends who have been there for me. I wish some days my family and best friend were not so far away, but sometimes life just takes you different directions.
  • This should not come as a shock to those who have known me for a long time but I have a very hard time opening up about my feelings. It took me months to start telling people I was having problems. After my diagnosis in April, I couldn't talk about it without crying like a baby... I am finally getting better about that. Although I find it interesting some people I seem to have no issue saying what my issue is to and others I do. 
  • I have shed more tears this year than I can ever remember. My hormones hate me, my body hates me and well the medicine is a whole other story.
  • The medications that I can't keep straight I have to keep in an a.m./p.m. pill case. Definitely not where I thought I would be when I hit 30 years old.
  • I thank God for finding the right doctor who is working to get me better along with his team.
  • I think I am finally turning a corner where I can fathom the thought of allowing a person close to me, physically and mentally. Eventually I will get there and maybe someday I will meet the right guy, but for now I am still just trying to focus on getting better.
I can only imagine now that there are other women out there going through these problems and have no idea where to turn, I guess all I can say to that is don't give up.

One doctor early on in this journey, looked at me and said what do you think is wrong with your body? I told him my thoughts and he said you seem to know your body pretty well and I would say what you think is right, because you do not belong in my office. So if nothing else I have found some doctors that seem to listen pretty well.

This is not really an anniversary to celebrate, because well just like how I feel right now it is painful, but I am going to keep pushing through until I get to where I need to be. Right now I am where I need to be and getting my proper treatment. Tomorrow brings another appointment with a nerve specialist, which should set me up for a surgical procedure, hopefully sooner than later and put me on the path to wellness.

Another photo I found that sums up many of my thoughts, not sure of it's origin but it was floating around on Facebook and I find the words to be so very true. 


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